Medpedia

• Sarcoma

DISEASE CHARACTERISTICS:
-  Diagnosis of Ewing sarcoma, including peripheral primitive neuroectodermal tumor and
Askin tumor
-  Newly diagnosed or recurrent disease
PATIENT CHARACTERISTICS:
-  Not specified
PRIOR CONCURRENT THERAPY:
-  Not specified

OBJECTIVES:

-  Collect biological specimens, including associated demographic and clinical data, from
patients with Ewing sarcoma.

-  Provide a repository for long-term storage of Ewing sarcoma-related biological
materials.

-  Make collected specimens available to qualified researchers to understand the biology
of Ewing sarcoma and correlate these results with demographic and clinical data.

OUTLINE: This is a multicenter study.

Patients undergo collection of tumor specimens, bone marrow, and peripheral blood at
diagnosis. Associated demographic and clinical data are collected and archived.

Patients who are not enrolled on a therapeutic clinical trial are followed annually.

PROJECTED ACCRUAL: Not specified.

• Other: biologic sample preservation procedure
• Other: medical chart review

• Banking of biological specimens, including associated demographic and clinical data
  Safety Issue: No

• Stephen Lessnick, MD, PhD
  Study Chair, University of Utah
• Richard Gorlick, MD
  Study Chair, Children's Hospital at Montefiore

• Swiss Pediatric Oncology Group Bern
  Bern, 3010, Switzerland
  Recruiting
  Roland A. Ammann

  0
• San Jorge Children's Hospital
  Santurce, 00912, Puerto Rico
  Recruiting
  Luis A. Clavell

  (787) 728-1575
• Centre Hospitalier Universitaire de Quebec
  Quebec, G1V 4G2, Canada
  Recruiting
  Bruno Michon

  (418) 656-4141
• Saskatoon Cancer Centre at the University of Saskatchewan
  Saskatoon, Saskatchewan, S7N 4H4, Canada
  Recruiting
  Christopher Mpofu

  (306) 655-2744
• Allan Blair Cancer Centre at Pasqua Hospital
  Regina, Saskatchewan, S4T 7T1, Canada
  Recruiting
  Mansoor M. Haq

  (306) 766-2498
• Hopital Sainte Justine
  Montreal, Quebec, H3T 1C5, Canada
  Recruiting
  Yvan Samson

  (418) 656-4141
• Hospital for Sick Children
  Toronto, Ontario, M5G 1X8, Canada
  Recruiting
  Sylvain Baruchel

  (416) 813-7795
• Children's Hospital of Eastern Ontario
  Ottawa, Ontario, K1H 8L1, Canada
  Recruiting
  Jacqueline M.L. Halton

  (613) 737-7600
• Cancer Centre of Southeastern Ontario at Kingston General Hospital
  Kingston, Ontario, K7L 2V7, Canada
  Recruiting
  Mariana P. Silva

  (613) 549-6666
• McMaster Children's Hospital at Hamilton Health Sciences
  Hamilton, Ontario, L8N 3Z5, Canada
  Recruiting
  Carol A. Portwine

  (905) 521-2100
• IWK Health Centre
  Halifax, Nova Scotia, B3K 6R8, Canada
  Recruiting
  Margaret C. Yhap

  (902) 470-8778
• CancerCare Manitoba
  Winnipeg, Manitoba, R3E 0V9, Canada
  Recruiting
  Rochelle A. Yanofsky

  (204) 787-4163

• Children's Oncology Group
  Lead Sponsor
• Unspecified

• Clinical trial summary from the National Cancer Institute's PDQ® database
  http://cancer.gov/clinicaltrials/COG-AEWS07B1