This community is for anyone interested in learning more about rare diseases, rare disorders and related topics.
Chris Hempel posted Vote 4 Hope at Pepsi Refresh To Find Cures for Rare Skin Conditions like Epidermolysis Bullosa, Harlequin Ichthyosis, Xeroderma-Pigmentosum to Double Trouble - Life With Sick Twins.
Nicole Boice posted Vote4Hope Campaign – from Global Genes Project and Children’s Rare Disease Network to R.A.R.E. Blog.
Chris Hempel posted Pepsi Refresh Links For Vote4Hope, Vote 4 Hope Rare Disease Campaign to Double Trouble - Life With Sick Twins.
Chris Hempel posted Gleevec Cancer Drug Reported To Work In Alzheimer’s disease also working in Niemann Pick Type C mouse to Double Trouble - Life With Sick Twins.
Chris Hempel posted Rare Disease Foundations Need To Vote 4 Hope In Pepsi Refresh to Double Trouble - Life With Sick Twins.
Nicole Boice posted The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition to R.A.R.E. Blog.
Nicole Boice posted The Global Genes Project Aims to Battle Rare Disease Through the ‘Vote4Hope’ Campaign and Pepsi Refresh Competition to R.A.R.E. Blog.
Nicole Boice posted MarbleRoad Launch and Fundraising Event to Support Families Affected by Complex Illnesses to R.A.R.E. Blog.
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Lorimer Moseley DrEditor
NHMRC Senior Research Fellow
Michael David Cadogan FACEMEditor
Clinical Senior Lecturer, UWA Medical School
Linda Burke-Galloway MDEditor
Senior Ob-Gyn Physician
Jonathan F Kuniholm MS, MIDEditor
Research Assistant
Student
Senior Policy Coordinator, DC Primary Care Association