This community is for anyone interested in learning more about rare diseases, rare disorders and related topics.
Nicole Boice posted RARE Charities Unite Worldwide to Fund Research for Rare Disease to R.A.R.E. Blog.
Nicole Boice posted Sempra Energy Foundation Encouraging Volunteerism and support of rare disease! to R.A.R.E. Blog.
Nicole Boice posted GUEST BLOG: A special collaboration among the RARE Project, Grand Rounds, and The Afternoon Nap Society to R.A.R.E. Blog.
Nicole Boice posted CNN Health – Mom claims in viral blog that disabled child denied transplant to R.A.R.E. Blog.
Chris Hempel posted Rare Disease Day 2012 – Spread This Call To Action To Make A Difference! to Double Trouble - Life With Identical Twins With Fatal Genetic Condition.
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Michael David Cadogan FACEMEditor
Clinical Senior Lecturer, UWA Medical School
Lorimer Moseley DrEditor
NHMRC Senior Research Fellow
Linda Burke-Galloway MDEditor
Senior Ob-Gyn Physician
Jonathan F Kuniholm MS, MIDEditor
Research Assistant
Student
Clinical Research Coodinator