RareSpace
This community is for anyone interested in learning more about rare diseases, rare disorders and related topics.
Research Registries for Rare Diseases
Sep 07, 2010 at 12:59pm
Sep 26, 2010 at 5:44pm
It went very well, and yes there will be another one. I've put all the information for it below. If you would like Chris, I can register you for it myself. Here is the information: "Using Clinical Data to Accelerate Rare Disease Research", Tues. Sept. 28th at 2 PM (EDT). You can click this link to sign up, listen in, and see some tools in action that could shave years off of research.
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Michael David Cadogan FACEMEditor
Clinical Senior Lecturer, UWA Medical School
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Lorimer Moseley DrEditor
NHMRC Senior Research Fellow
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Linda Burke-Galloway MDEditor
Senior Ob-Gyn Physician
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Jonathan F Kuniholm MS, MIDEditor
Research Assistant
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Student
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Program Coordinator, Child Health Specialty Clinics
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- Ask a question
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Join this Community to:
- Ask a question
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- Get real-time email updates