The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.
CRDN has built a platform for communicaiton, collaboration, education and exists to create greater public awareness about the prevalence of rare disease and it's impact on children and their families.
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations committed to the identification, treatment, and cure of rare diseases through programs of e ducation...
Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of in dividuals...