MarbleRoad's Blog
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Jan 30, 12 06:55AMBlog Hop 2012 -- a program of the RARE Project to bring awareness to Word Rare Disease Day 2012. For Blog Hop 2012, MarbleRoad shares info about their IndieGoGo Campaign, a benefit concert, and the Ra re...
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Oct 17, 11 07:54PM50/50, a film starring Seth Rogen and Joseph Gordon-Levitt based on the true story of Will Reiser who is a survivor from a battle against a rare cancer of the spine. // The Children's Tumor Foundation seeks...
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Sep 06, 11 08:08AMWhen someone asks me who I am or what I do, I typically default to any combination of journalist, student, writer, intern. I think these descriptions embody just about every person I currently attend college...
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Aug 01, 11 09:10PMThe Flammable Heart Exhibition is coming up Aug 7-13 for National Health Center Week. This post is a brief but candid look at the world of complex illness, and how MarbleRoad is trying to find creativ e...
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Jul 04, 11 01:24PMThe Charles August Long Undiagnosed Diseases Act of 2011; the battle to save community health center funding and keep Medicaid intact; The Walking Gallery; and The Flammable Heart Exhibition.
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Feb 27, 11 03:51PMUpdates from MarbleRoad for Rare Disease Day 2011, including events, publications, and a quick shout-out for those fighting rare kidney disease.
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Feb 18, 11 08:16AMRemarks by Howard Liebers at 2011 Serve DC Life After AmeriCorps Conference. Each year, Serve DC - The Mayor’s Office on Volunteerism brings together AmeriCorps members from a variety of program s...
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Feb 10, 11 08:18PMA statement from Howard Liebers on the House Appropriations Committee's proposed budget cuts, particularly its impact on community health centers, national service, health information technology, and rare...
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Dec 16, 10 08:28PMA legislative update on anti-ACA litigation, the Medicare and Medicaid Extenders Act of 2010, and Rare Disease Day 2011. Oh, and HAPPY HOLIDAYS!
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Oct 21, 10 10:34AMThis post offers a round-up of celebrity and blog PR support for the MarbleRoad Launch Party and Fundraising Event, as well as a discussion on love and acceptance. Let's learn to accept one another re gardless...
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