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Mar 29, 12 08:35PMURGENT :: 6-month old Harlow needs your help; she has alpha-1 antitrypsin deficiency and needs a liver transplant. Read this post for more information about how YOU can help.» Read more
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Feb 27, 12 02:27PMReblogged from Listen Local First: Performing for a cause is different than the average concert; there’s a certain appeal philanthropy brings to a musical experience. Musicians can’t be st ereotyped...» Read more
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Feb 17, 12 08:37AMAs millions of Americans observe National Rare Disease Day this month, we share a compelling story of one patient’s lifelong struggle with a very rare disease. Texas resident, Dave Crawford, is sharing...» Read more
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Feb 16, 12 01:30PMA guest blog post by Liz Donohue of CoRDS: The Coordination of Rare Diseases at Sanford (CoRDS) registry is a national disease registry that includes all rare diseases. The CoRDS registry is headquart ered...» Read more
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Jan 30, 12 06:55AMBlog Hop 2012 -- a program of the RARE Project to bring awareness to Word Rare Disease Day 2012. For Blog Hop 2012, MarbleRoad shares info about their IndieGoGo Campaign, a benefit concert, and the Ra re...» Read more
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Oct 17, 11 07:54PM50/50, a film starring Seth Rogen and Joseph Gordon-Levitt based on the true story of Will Reiser who is a survivor from a battle against a rare cancer of the spine. // The Children's Tumor Foundation seeks...» Read more
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Sep 06, 11 08:08AMWhen someone asks me who I am or what I do, I typically default to any combination of journalist, student, writer, intern. I think these descriptions embody just about every person I currently attend college...» Read more
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Aug 01, 11 09:10PMThe Flammable Heart Exhibition is coming up Aug 7-13 for National Health Center Week. This post is a brief but candid look at the world of complex illness, and how MarbleRoad is trying to find creativ e...» Read more
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Jul 04, 11 01:24PMThe Charles August Long Undiagnosed Diseases Act of 2011; the battle to save community health center funding and keep Medicaid intact; The Walking Gallery; and The Flammable Heart Exhibition.» Read more
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Feb 27, 11 03:51PMUpdates from MarbleRoad for Rare Disease Day 2011, including events, publications, and a quick shout-out for those fighting rare kidney disease.» Read more