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  • 4
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    answered Apr 27, 2010 at 11:49AM
    Best Answer
    First and foremost, I believe a patient should hear a word like "death" from their own physician, not from someone whispering loudly in the hall. It is nearly always easier to face a situation we know than one we are merely speculating about. Secondly, death is mentioned in the consent for nearly every procedure, so it isn't like our patients don't hear the word all the time.Finally, and most importantly, it is a situation which we will all have to face eventually, It is the natural end of life, and dealing with it openly and honestly will help us and out patients deal with the reality in as calm and fearless situation as possible. Our fear of dealing with death isn't merely our patients' but also own.

    Finally, while we need to be realistic and honest with out patients, we must NEVER remove all hope. Therefore never be completely fatalistic. It is only when we speak freely that we can also honestly tell a patient that somewhere, someone survived.
    • I think this is a really valid point. I agree with your point that doctors should never remove all hope. Unbelievable things have happened where a patient was told he/she would die, and this didn't happen. As a side note, some terminally ill patients eventually come to accept death as a relief, so it's not necessarily a bad word to them, but a medical professional needs to be careful about when and if this word should be used.
      Beth L. Gainer commented Apr 27, 2010 at 12:22PM
  • 2
    Votes
    answered Apr 27, 2010 at 12:28PM
    Though "death" may be a distasteful word for both the patient and the physician and the doctor might wish to find some other word or expression to tell the same prognosis, I doubt there is any word or words which can easily substitute. "Hope" is an important word to modify the significance of the death prognosis. Hope is virtually always present since there is always some element of unknowing in a prognosis. But the hope should be tempered in realistic terms so that the hope should not lead to procedures or treatments that in the end had provided nothing but the potential for further suffering. However, as a substitute word for "death", I would advise against using the word "hopeless". ..Maurice.
  • 3
    Votes
    answered Apr 29, 2010 at 06:59AM
    Death is a reality and it is a word that must be used. I'm wondering why it would not be considered ethical.

    Not all patients can and will be cured. It's a sad fact, but it is true. By not acknowledging that death possible or probable, the doctor is taking away the patient's ability to continue with the time he or she has left in the manner that they want.

    Many years ago, when I was a new nurse, we would often have patients who did not know they were dying. Their families would not allow us to tell them. Even then, I knew that was wrong. First of all, in my very strong opinion, they know they are dying. And, if they know it, how must they feel if the also know that no-one around them will allow them to talk about it? HOw can they tie up loose ends - if they have any - if no-one will acknowledge that they will die?

    As for doctors mentioning death while speaking to patients, if you have a potentially fatal illness, how can this not be addressed? It would be like an elephant in the room for those who know.

    Many years later, I worked in palliative care, where death was an every day event. The sad thing is, because many patients hadn't really been prepared for dying, dealing with it in the final days were often more difficult than maybe they could have been.

    As a society, we need to talk about death openly, as a topic that is a part of life. It shouldn't be the taboo it is now. By talking about it, we don't make it any less sad when it happens, but it makes it a more acceptable issue, one that people may not fear so much.
    • Yes, in my extended and nuclear family, the "D" word isn't used. It's so taboo, and in my extended family, family members would not allow each other to know they were dying. It's not ethical to lie to patients just to spare them the word, "death."
      Beth L. Gainer commented Apr 29, 2010 at 04:50PM
  • 2
    Votes
    answered Apr 29, 2010 at 12:51PM
    Absouletly !!! A physician should use the word death and should be empathetic to whom he/she is speaking. It is inappropriate to use euphamism in order to avoid the tough conversations. Terms like "passing on" or "gone" or "coming home" are not clear ways to communicate, but "death and dying" are.

    Second point. Who defines "hope"? It is cruel to give false hope of a cure or resolution of an illness. Patients and families need information and honesty. Death may offer hope in some instances.

    Kudos to those who have already commented with frankness and honesty. Eric, Beth, Marijke and Maurice.
    • Thank you for your kind words, Gerry. I always appreciate them!!
      Beth L. Gainer commented Apr 29, 2010 at 04:48PM
  • 2
    Votes
    answered Apr 29, 2010 at 04:59PM
    At the same time, it's ethically immoral for a doctor to simply throw around the word "death" and "dying" or imply such an impending event to the patient when there's no evidence to support that claim. I've known people who were diagnosed as about to die, and the diagnosis/prognosis was incorrect.

    I can personally connect to this issue with my breast cancer prognosis. My oncologist felt I would most probably beat the cancer, but I sought a second opinion just because it felt like the right thing to do. For the second-opinion doctor, I brought up the issue of having children (I wanted to be a mom and harvest my eggs). This second-opinion oncologist told me, and I quote: "Why would you want to have a child -- if only to make him/her an orphan?"

    I left his office in tears, feeling I was doomed to die young.

    Egg harvesting didn't happen, but I am pleased to report that, nine years after that prognosis of "death" no future, I've adopted a baby girl from China, a child whom I am sharing my future with.
  • 2
    Votes
    answered Apr 29, 2010 at 07:07PM
    "Why would you want to have a child -- if only to make him/her an orphan?" Hmmmn.. sarcasm is truly not therapeutic and does not represent any fragment of empathy which is what should have been coming from the mouth of a real physician. Just my opinion. ..Maurice.
    • Thank you so much, Maurice. I've had experiences with great doctors, and this guy was far from it. I am very lucky to have survived, thanks to the hard work and dedication of my medical team.
      Beth L. Gainer commented Apr 30, 2010 at 04:25AM
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