answered Jun 08, 2010 at 11:15AM
Ann, you are a very courageous woman, and I admire how you seized the reins of your own health care and took part in your medical advocacy. I, too, knew I had breast cancer before the biopsy was done and went into planning mode, but only after a couple of days of shock and feeling sorry for myself.
Each person is different, and there's no right way to deal with a breast cancer diagnosis. Even though I felt sorry for myself and threw a pity party (and I throw good pity parties!), I still moved forward with seeking out the appropriate medical advice and going forward with my treatment plan.
Women who are shocked and frightened by their diagnosis can be just as courageous as women who are not in shock. There were times I curled into a ball with fear, but I still took good care of myself and reached out to avenues that could help me cope. Again, there's no right way to react to a diagnosis of breast cancer, but allowing oneself to be afraid and in shock can also help someone psychologically. In my case, I'm glad I had that brief period of time to feel afraid and depressed.
In terms of getting the bad news on the phone, I was OK with it. A more important issue is minimizing the amount of time a patient has to wait for the news. My surgeon, who did the biopsy, is the one who called. He did the biopsy two days before and told me then that he thought it was cancer, which confirmed my suspicions and perhaps softened the blow when he confirmed it on the phone.
For the prognosis, I went to my surgeon's office, which was the right thing. I personally preferred what I got: a diagnosis over the phone and a prognosis in person.
I am very fortunate, as I am very close with all my doctors (I have had to fire a few along the way, but I hired and kept the ones whom I felt connected with me). My PCP has been my rock, but in my case, the surgeon also was the appropriate person to break the news to me because during the biopsy, he told me how he hoped it wasn't cancer even though it didn't look good. I knew during those moments that he cared about me as a person.
During the phone call when he confirmed the diagnosis, he did ask me if I wanted to come in -- if I needed him. I declined, but I really appreciated the offer.
I think an issue that needs to be explored more is a patient's feelings after treatment has ended, if the treatment has ended. I am very lucky to have survived breast cancer thus far, but life after cancer has been difficult for me and many women psychologically. When fighting the disease, you go into survival mode, go through treatments, etc. But after all the treatments are done, it's hard for many women (not all) to go back to their lives as if nothing has happened and as if breast cancer was just a blip in the past.
My post-breast cancer life has been better and richer than I could have ever imagined. However, the post-cancer aftermath has also been challenging for me. Seeing doctors, fear of recurrence, etc. have their effect as well.