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  • 3
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    answered May 30, 2010 at 05:27PM
    "Worry", I suppose is an emotional concern or uncertainty beyond a simply intellectual concern about a medical condition. If one is to worry, it is more rational (realistic) to save the worry until after a final diagnoses is established by your doctors rather than before. The fact that you are to have a mammogram and a sonogram scheduled is because no diagnosis has been established for which a further procedure or treatment, if needed, can then be recommended. Wait until all the results are back. At that time, "worry" can be eliminated by the absence of abnormal results or, if abnormality is present, may be minimized by realistic education provided by your doctors. ..Maurice.
  • 4
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    answered Jun 01, 2010 at 08:05AM
    Very natural to feel worried. you don't have enough information yet though to jump to the conclusion that this finding is bad news. It could be a benign growth like a fibroadenoma or even a papilloma which is also benign. So hang on until you have more information. we hope the outcome is good news. L
  • 2
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    answered Jun 01, 2010 at 09:02AM
    Until your tests are done, there is no way to know what is wrong with you - if anything. To reassure you, a high percentage of people who go in for these tests end up having benign disease, even with nipple leakage. That alone is not a sign of cancer, and it could be many other things. However, being a breast cancer survivor, I understand the concern you are feeling. Try not to worry until you know more, and realize that even if it is what you fear, it's not something you can't get through. Waiting for tests is the worst part of the whole experience - fear of the unknown is the hardest thing we humans have to deal with. Stay positive, realize the odds are with you, and do something healthy to relax during this period. Good luck!
  • 0
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    answered Jun 01, 2010 at 02:19PM
    Hi Ann,
    Matthew 6:34 "So don't worry about tomorrow, for tomorrow will bring its own worries. Today's trouble is enough for today.

    Did you know there are 366 verses in the Bible concerning worry and fear; that is one for everyday and leap year.

    Yes, I had to break out some Word for you,'cause that's just how I roll.

    Don't worry!
  • 3
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    answered Jun 01, 2010 at 07:53PM
    The fastest way to take the "worry" out of your situation is to see a qualified breast specialist.
    Depending on your community that may be a surgeon or a radiology specialist group which specializes in breast diseases only. At our office we review the mammogram, do ultrasound and do a biopsy at the first visit... Call around to see if you can find a breast specialist who has ultrasound certification and capabilities in the office where you can have all that at one visit.
    Do Not settle for two or three weeks of wait for a qualified evaluation.

    Most palpable lumps are benign and an ultrasound at the time of initial examination can let you know what the most probable diagnosis is.

    Don't settle for delays, and find the most qualified surgeon or radiologist practice for a breast problem.
  • 1
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    answered Jun 01, 2010 at 08:56PM
    I appreciate the need for a speedy diagnosis to bring the patient's uncertainty and worry to a conclusion. I wonder, currently, how easy is this to happen when patients are faced with HMO or other insurance administrative delays in approval of procedures. Thomas, what has been your experience regarding these delays and what can the average patient with insurance do about it particularly when there should be urgency in initiating the workup despite it not being a frank medical emergency. ..Maurice.
    • Not all HMOs are created equally. I have a terrific HMO, where there were minimal delays and doctors worked tirelessly to ensure I was taken care of. That being said, I'm sure other HMOs are not as good. It's up to the patient, unfortunately, to advocate for him or herself to get the 2-ton ball rolling. Patients need to be persistent in getting the appropriate and necessary medical care.
      Beth L. Gainer commented Jun 03, 2010 at 06:26AM
  • 1
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    answered Jun 03, 2010 at 06:33AM
    These symptoms can be from a benign source, so you have to play the waiting game until your doctor has all the information. As a breast cancer survivor, I know exactly the kind of worry that waiting provokes. The waiting game is the hardest part of it all.

    But you will get your answer eventually.

    Kudos to you for seeking out medical advice. So many women in your situation opt not to because they are too scared. You may be worried, but you are courageous, too.

    It's really near-impossible to avoid worry. Just take deep breaths and do your best to take one day at a time. Each person is different and some worry more than others.

    While I was waiting to hear the necessary medical news, I was exceedingly worried. It's normal. There is no one correct way to deal with it. If you want to reduce worry, keep busy, but don't be surprised if worry resurfaces now and then.

    Good luck and hang in there one day at a time.
  • 1
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    answered Jun 03, 2010 at 08:53AM
    If you're like me, telling you not to worry is of little help, so I completely understand your fears. Since I can't make those worries disappear, I can tell you to follow up with your doctor if you haven't received word on your test results in a timely manner. As a breast cancer survivor who's had more than my share of mammograms, MRIs, ultrasounds and x-rays, I know from experience test results are not always shared with patients in a timely manner. The waiting is the worst part, particularly if it's over a weekend and there's no one you can call about the results. That kind of stress triggers adrenaline and stresses your immune system, so try your best to get the upper hand on your worries.

    Sit outside in the sun; eat an apple, go to a movie, anything to take the focus off of yourself. Have you considered meditation? I particularly like some of the meditation CDs you can order online. They help me de-stress by forcing me to take time away from worrying and, for lack of a better description, puts my "brain on hold."

    As far as possible outcomes of your tests: Without hard evidence, don't play the "what if" game, needlessly worrying about things you have no knowledge about and no control over. Work hard at staying focused on the here and now, and don't get ahead of yourself. Believe me, I know this is easier said than done, but don't make the "what ifs' the focus of your day.

    Brenda Coffee, BreastCancerSisterhood.com
  • 1
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    answered Jun 07, 2010 at 02:23PM
    I just wanted to clarify that my saying "playing the waiting game," and "you will get your answer eventually" doesn't mean that I endorse waiting a long time for test results. I have been fortunate that my biopsy, ultrasound, MRI, mammogram, etc. results for my breast cancer screenings came through fast. I was ultimately diagnosed with breast cancer and waited two days and over weekends for test results. When one is waiting, even for a short time, a day or two seems like an eternity.

    I agree with Brenda that keeping busy doing things you love is a good way of coping with whatever wait you have. I also agree that you shouldn't have to wait too long for results. If the timeframe seems too long, call and call until you get action.
  • 0
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    answered Jun 07, 2010 at 03:29PM
    One other issue is where either the "bad" or "good" news should be related to the patient. By mail? On the phone? In a hospital corridor? In a private room or office? And also, by whom?: a secretary? a nurse? a pathologist? the patient's attending physician? And finally, how much should be told and in what detail? What questions by the patient should be answered directly. Are there any kinds of questions by the patient which should be not answered directly. If so, what might they be? What is the role of the family regarding the reporting of "bad" or "good" news to the patient?

    If you were the patient's physician, how would you feel having the conversation regarding the medical news tape recorded by the patient for the reason suggested by the patient "so that I can remember the details since I may be too worried and emotionally upset at the time of the revelation of the results."

    All of these issues present themselves at the time when the patient is to be informed and the "how" and "who" of the revelation is just as important to the physician and the patient as was the "what" and the final question "why???" ..Maurice.
  • 0
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    answered Jun 07, 2010 at 05:58PM
    Interesting questions. For me, I really did know I had cancer before anybody told me. It was unmistakeable. So, I relayed my feeling to the radiological tech's so they'd know I was ready to hear the news, and the radiologist came in and told me I was right. Of course, he was equivocal as I hadn't had a biopsy yet but he did say he thought there was an 80% chance it was cancer.

    When the biopsy results came in, my PCP gave them to me over the phone, which was fine with me. Had he said "come to my office" I'd have known anyway and have had the delay in finding out it was invasive. On the phone, I asked him to fax me the radiology report, which he did immediately. I wanted to know everything. I educated myself as much as a layperson could and definitely wanted my questions answered in full.

    But, again, I know some patients who want to hear the news and then leave the rest up to the doctor.

    All women are different. I was not in shock or emotionally upset - I was in "move forward and make a plan" mode. Other women may need a more gentle way to be told. I think the PCP might be the best person in general, because they presumably have a relationship with the patient and will understand how to break the news to them.
  • 0
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    answered Jun 07, 2010 at 07:25PM
    Ann, thanks for presenting your experience here since it raises even more questions and unknowns. It is clear, certainly from your example, that under what conditions the patient is told the news and how it is accepted by the patient is going to vary from patient to patient. Do you think that you are a fortunate statistical outlier with your lack of shock and "moving forward" attitude? I have taught my medical students that certainly giving a "bad" diagnosis over the phone was a professional "no-no" in part supported by my own conversations with patients who were notified over the phone by their prior physicians. I would agree that actually "all patients are different" How should a physician decide whether to give an answer over the phone or within a private office talking to the patient face to face? I frankly never considered that patients would appreciate getting the results over the phone or even casually standing in a hospital hallway. Would you feel comfortable if your doctor asked you prior to the workup "how would you like me to present you the news, either good or bad?" And the physician should be then guided by the response? Again, thanks for what you wrote and I send my best wishes for you. ..Maurice.
  • 0
    Votes
    answered Jun 07, 2010 at 09:09PM
    Dr. Bernstein,

    I am certainly a statistical anomaly - by now I've heard dozens upon dozens of stories about how women found out about their cancer, and few were as prepared as I was. Most had that feeling of shock and inability to absorb the discussion that you alluded to above with your comment about the recordings.

    However, I think that getting bad news over the phone isn't a problem for most people, in fact, it can give a patient time to absorb the shock and get to a place where they can ask questions when they see their doctor. Understanding and coming up with real questions is hard to do 30 seconds after you have been given a diagnosis of something like cancer.

    The fact is, doctors don't call you to come in for positive/benign test results anyway, so a patient asked to come in is already going to know that something is wrong. Since our discussion revolves around worry, the best way to alleviate it would be to give the news straight out with a quick appointment after to discuss treatment options.

    This very thing has been discussed on cancer boards, and most patients prefer a phone call or to be given the news as soon as possiblee. However, not all do and that is why your job is very difficult. And, why the PCP would be the best at giving an initial diagnosis as they know the patient best.

    As for your question about asking the patient how they wanted to hear the news about a workup, "good or bad" - doesn't that impose something unreasonable upon the doctor? For if the patient says "in person" than does that mean the doctor is obligated to make time to give benign results to a patient in-office? A physician should be guided by a patient's wishes within reason - but calling somebody in to say "you have nothing wrong" is not a reasonable way to spend anybody's time, both patient or physician.

    Thank you for letting me share my thoughts with you, I appreciate it.
    • On reviewing your response after a couple of days, I would like to say that telling "bad" news over the phone doesn't allow the patient to receive full signs of empathy from the physician: facial expressions and appropriate laying on of hands, nor is the physician able to see the patient's response and react accordingly. If the news is "good" the phone contact may be too brief to answer all the patient's questions regarding explanation of the symptoms which led to the testing. I still think "by phone" is the wrong way for telling both for "good" and "bad" news. ...Maurice..
      Maurice Bernstein MD commented Jun 09, 2010 at 10:07AM
  • 1
    Votes
    answered Jun 08, 2010 at 11:15AM
    Ann, you are a very courageous woman, and I admire how you seized the reins of your own health care and took part in your medical advocacy. I, too, knew I had breast cancer before the biopsy was done and went into planning mode, but only after a couple of days of shock and feeling sorry for myself.

    Each person is different, and there's no right way to deal with a breast cancer diagnosis. Even though I felt sorry for myself and threw a pity party (and I throw good pity parties!), I still moved forward with seeking out the appropriate medical advice and going forward with my treatment plan.

    Women who are shocked and frightened by their diagnosis can be just as courageous as women who are not in shock. There were times I curled into a ball with fear, but I still took good care of myself and reached out to avenues that could help me cope. Again, there's no right way to react to a diagnosis of breast cancer, but allowing oneself to be afraid and in shock can also help someone psychologically. In my case, I'm glad I had that brief period of time to feel afraid and depressed.

    In terms of getting the bad news on the phone, I was OK with it. A more important issue is minimizing the amount of time a patient has to wait for the news. My surgeon, who did the biopsy, is the one who called. He did the biopsy two days before and told me then that he thought it was cancer, which confirmed my suspicions and perhaps softened the blow when he confirmed it on the phone.

    For the prognosis, I went to my surgeon's office, which was the right thing. I personally preferred what I got: a diagnosis over the phone and a prognosis in person.

    I am very fortunate, as I am very close with all my doctors (I have had to fire a few along the way, but I hired and kept the ones whom I felt connected with me). My PCP has been my rock, but in my case, the surgeon also was the appropriate person to break the news to me because during the biopsy, he told me how he hoped it wasn't cancer even though it didn't look good. I knew during those moments that he cared about me as a person.

    During the phone call when he confirmed the diagnosis, he did ask me if I wanted to come in -- if I needed him. I declined, but I really appreciated the offer.

    I think an issue that needs to be explored more is a patient's feelings after treatment has ended, if the treatment has ended. I am very lucky to have survived breast cancer thus far, but life after cancer has been difficult for me and many women psychologically. When fighting the disease, you go into survival mode, go through treatments, etc. But after all the treatments are done, it's hard for many women (not all) to go back to their lives as if nothing has happened and as if breast cancer was just a blip in the past.

    My post-breast cancer life has been better and richer than I could have ever imagined. However, the post-cancer aftermath has also been challenging for me. Seeing doctors, fear of recurrence, etc. have their effect as well.
  • 0
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    answered Jun 08, 2010 at 01:01PM
    Well I had my mammogram and ultrasound today. The radiologist said he saw what he thought was a lymph node on the mammogram, so he wanted a better look with the sono. She wasn't able to find what she thought was a lymph node where she was told to look. So I left with them saying they would look some more at the images, but unless I noticed the mass getting larger or changing, and as long as I didn't hear from them, just make sure I came back in 6 months for a re screening. I really don't know how I feel about what they said today....so was it a lymph node, or not? and why is it now large enough for my dr. and I to feel it? I don't know much about all of this, so any comments or suggestions?? Thanks for everyone's words of encouragement the last couple of weeks also. God bless you all.
  • 1
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    answered Jun 08, 2010 at 02:21PM
    Norma, this wait-and-see thing doesn't sound good. I'm not suggesting that you have a life-threatening condition, but I strongly recommend you get a second opinion as soon as you can -- just to be on the safe side and reassure yourself.

    You need to do what is very difficult: advocate for yourself and keep calling doctors until you get a satisfactory explanation of what is going on with you medically. Don't allow doctors to intimidate you into complying with their wishes for you to wait six months. Fire doctors who don't give you satisfactory answers and keep trying to find doctors who can figure out what it is they are seeing.

    Just know that somewhere, there's a doctor who can shed light on this, and you need to do your best to find him or her.

    Trust your gut instinct.Good luck with this and keep pursuing information. Don't stop.
  • 1
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    answered Jun 08, 2010 at 03:24PM
    Norma, are you the patient who wrote the original question? If you are, then the following comments are for you. You originally wrote "the doctor found a mass" and I presume from your last posting that you yourself felt a mass and thus confirmed the doctor's finding of a mass. What appears as a breast mass on physical exam might not be any pathology like a cancer or abnormal lymph node but old inflammatory changes or clumped normal breast tissue. The folks that told you about the results of the studies, did that include the doctor who originally found the mass? If your doctor wasn't present, it is your doctor who must communicate with the radiologist, review and try to correlate the physical finding to what is on the mammogram and sonogram. And then it is your doctor's responsibility not that of the radiologist or sonographer to explain to you what the results of the study mean. So, based on what I am assuming, it may well be that the diagnostic relationship between you and your primary doctor is not over as yet and searching for a second opinion is a bit premature. Don't wait for 6 mo. In the next week, have an appointment with your primary doctor, have the doctor re-examine you and then, most importantly, sit down with you and explain the finding, the possibilities, his or her review of the studies with the radiologist and attempt to answer your questions. It is that which I think is missing so far. If I am mistaken and your physician did all that already, a repeat visit now is still important. For what reason? To answer the questions that you have and expressed here but have not been explained to you. To hold unanswered questions which could be easily answered for 6 months can be a terrible and unnecessary burden. I hope my advice is helpful. ..Maurice.
  • 0
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    answered Jun 08, 2010 at 07:37PM
    Dr. Bernstein, I am the one that posted the original question. Not only have I not spoke with my doctor about the tests today, but I actually didn't even speak with the radiologist. He sent only the sonographer in to speak with me, and to let me know that what he saw on the mammo was not confirmed by anything on the sono. So if nothing else changed, then to come back in for mammo in 6 months. I will take your advice and make an appointment with my doctor to at least find out what she felt and I felt, and the cause of the discharge for the last year. The only thing I was told today on that was that they are not too concerned as long as the discharge is not bloody. One question I do have is...are there lymph nodes on the top part of the breast, down from the collar bone? Thank you for all your advice. Norma
  • 1
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    answered Jun 08, 2010 at 08:42PM
    The sonographer is usually not a physician but a technician and is certainly not your personal primary physician and in my opinion is not the one to give not only the initial results but also the details of the followup. It should be your physician after review with the radiologist. Did the radiologist or sonographer performed a physical exam on your breast prior to their procedures? Did they feel the mass? If not, did you locate the mass that you and your physician felt to show its location for the sonographer?

    Location of breast lymph nodes can be seen in diagram at http://www.cancerhelp.org.uk/type/breast-cancer/about/the-breasts-and-lymphatic-system

    Returning to your primary doctor soon for the fuller understanding of the results of the tests and the plan for the future is the correct approach. ..Maurice.
  • 1
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    answered Jun 09, 2010 at 08:32AM
    I totally agree with Maurice, who gave you sound advice. The results need to be explained by your doctor.

    I do want to add one thing. If you sense that your doctor is unsure of what's going on, or if the radiologist or sonographer seem to be unclear with what is going on, or if you are less-than-satisfied with the information disseminated to you, then I suggest you have the results faxed to another doctor so you can have your questions answered completely.
  • 2
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    answered Jun 10, 2010 at 10:06AM
    Norma,
    Absolutely get another opinion and another if you feel it is warranted. You obviously have a strong voice and are a great advocate for yourself. If there is any doubt in your mind as to what is going on, ask for a biopsy and stand firm with your request.

    In 2004, I had a mammogram of a suspicious lump and was told it was a benign fibro cystic mass and not to worry about it, to take Vitamin E and it would go away. For the next six months I worried, and would search for it every day to see if it had changed. I finally had another mammogram. I didn't ask my doctor for permission. I just had it done. My doctor called me and said, "What's up with the second mammogram? I told you. It's fine. Nothing's changed over the last six months." I told him I didn't care what the mammograms said, I wanted it out. Three days later, he did a biopsy and sure enough, there was a fibro cystic mass, but when he cut it out, there it was... Hiding underneath. I had breast cancer.

    I don't say this to frighten you, but listen to your little voice. It has served me well. Had I listened to the radiologist, and my doctor, I wouldn't be here now. My little voice--I think it is the voice of God--also made me stand firm in my decision to have a BRAC Analysis test. My oncologist said it was a waste of money because I had no family history of breast cancer, but I had one run anyway. And you know what? I am BRCA2 positive!

    We are our own best advocates and play as big a role, sometimes bigger, than even the best doctors. Do not be afraid to seek as definitive of an answer as you can get. Brenda Coffee
  • 2
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    answered Jun 10, 2010 at 10:24AM
    Norma,

    Brenda is completely right in promoting self-advocacy. We do have to listen to that little voice and our gut instincts. Patients are more powerful than we can ever imagine, and oftentimes we do know more than our doctors when something is awry.

    Like Brenda, I've successfully advocated for myself, and I insisted in pursuing the necessary avenues to get what I needed from my doctors.

    I was told I was too young for breast cancer, and a mammogram was negative just about a month before I found a slight dimple in my right breast. I insisted on getting this checked out, told by my then-gynecologist that it was probably nothing, but he sent me to my hospital's breast center.

    Turned out it was breast cancer and I saved my own life.

    I saved my own life a second time when a routine followup MRI revealed something in the same breast that had had the cancer. Understandably I was scared, and I was lucky that it turned out to be scar tissue from previous surgeries.

    But there was a nagging feeling in my gut that if I didn't get a double mastectomy with reconstruction, I would get breast cancer again, given my history and the fact that I had breasts so dense, they made it hard for medical professionals to see anything.

    Some doctors told me they thought removing my breasts was unethical and they said they wouldn't do it. Other doctors told me that I should remove organs that weren't up for discussion -- or up for removal.

    My oncologist and PCP agreed with me and felt my judgement was "medically sound." I hired the right mastectomy surgeon and plastic surgeons.

    A few weeks later, my oncologist told me that a biopsy of the removed breasts showed I had pre-cancerous cells in my left breast, and had I not followed my instinct, I would've most likely had cancer in my other breast.

    I also don't want to scare you; your condition may be benign. But no one will advocate for you the way you can. Do what you need to do -- whether it be firing doctors who don't give you good information to hiring the right doctors -- to get a definitive answer, one that you are satisfied with.
  • 1
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    answered Jun 10, 2010 at 11:32AM
    Brenda and Beth both present remarkable stories and they are both worth reading and thinking about. Nevertheless, it appears from the information that Norma provided that she hasn't as yet finished proper consultation and review and planning with her first doctor and that should be accomplished first. After that, based on what she knows, doesn't know and is uncertain about should lead Norma to make her own personal medical decision as to the next step. The experiences of others with known breast cancer may be useful and could be very important for Norma but still what is to be done should still be based on the pure facts of what has already been documented but then, with the help of physicians, to also consider the uncertainties of all the probabilities. It may be an interesting challenge to the physician, but to the patient who might be sick but really doesn't know, the unknowns in medicine are no fun. ..Maurice.
    • Thanks for your comment. I agree that the unknowns in medicine are not fun at all. Waiting for my diagnosis and prognosis was agony.
      Beth L. Gainer commented Jun 10, 2010 at 08:32PM
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