My son has a movement disorder that is still mostly undiagnosed. The last "diagnosis" we heard was Paroxysmal Kinesigenic Dystonia or Dyskinesia. All this "diagnosis" really is is a medical-term version of the DESCRIPTION of what's happening to him. There's a genetic test that could confirm what's CAUSING what's happening to him, but the one lab that does the test won't do it for anyone under 21 (or is it 18?). FRUSTRATING. I'm happy to take any/all advise, recommendations, comments, criticisms, etc.

The top-notch, world-class folks at Barrow Neurological here in Phoenix, AZ seem stumped. Every test or treatment is a crap shoot - "Well, let's try THIS drug and see what happens...."

Tegretol (Carbamazepine) 200mg TID along with Klonopin (Clonazepam) ???mg TID appears to help, but not completely. Before he was suddenly struck with this monster in May 2008, Tim was trying out for the high school football team and was playing his Cello... now, he is hardly ever out of his wheelchair, can't use his right hand/arm at all (without a rebound) and his legs are beginning to waste away. (As of his latest appointment with his Movement Disorder doctor at Barrow, yesterday, he's lost nearly 6 pounds in a month.)